Until she was 15, Morse had 20/4,000 vision in one eye and only light perception in the other due to optic nerve hypoplasia, or an underdevelopment of the nerve that transmits vision signals from the eye to the brain. She could make out human figures but not see details, could only read if the paper was within inches of her eye, and could only watch TV standing with her nose pressed to the glass…
After raising $15,000 from community donations, the mother and daughter set out forChina on July 4…
She received spinal injections of cord blood stem cells each week for six weeks. After her third treatment, she realized she could read and knew the treatments were working…
More info on OPTIC NERVE HYPOPLASIA, SEPTO-OPTIC DYSPLASIA, MACULAR DEGENERATION and OPTIC CHEMICAL BURNS:
Treatment with adult stem cells, due to the amazing transformation from blindness to sight, are some of the most powerful success stories in adult stem cell treatments.
· Macie Morse from Colorado before stem cells had 20/4000 vision in one eye and in the other eye she only had “light perception,” she could only make out light. Also, she could only watch TV with her nose pressed against the glass. After treatment she had 20/80 vision in one eye and the other is 20/400+. She is now driving her family’s van and enjoying her new driving permit. http://repairstemcell.wordpress.com/2009/02/16/stem-cells-optic-nerve-hypoplasia-victory/
· Jakob Bielski from Canada received stem cell treatment because he couldn’t see at all and had no response to light. After the Cord Blood Stem Cells Were Implanted he has some vision, can respond to visual information and responds to light. http://donmargolis.com/blog/2009/03/stem-cell-research-helps-canadian-boy-see-light/
· Dakota Clarke’s mother said “It’s been worth every single penny to see the changes in her.” http://donmargolis.com/blog/2009/03/stem-cell-research-helps-blind-girl-septo-optic-dysplasia/
· Coby Fend’s mother said ““We are talking about going back — we’d almost be crazy not to, because right now it’s the best thing going in the entire world.” http://donmargolis.com/blog/2008/08/blind-child-can-now-see-thanks-to-adult-stem-cell-treatment/
· Connor Corkern’s mother said: “He’s doing great. He is doing wonderful. It’s like we’ve got a totally new baby.” http://donmargolis.com/blog/2009/01/stem-cell-miracle-optic-nerve-hypoplasia-adult-stem-cell/
· Cameron Petersen’s Grandma said: “There was nothing for Cameron before this treatment. Now, his world is limitless.”http://donmargolis.com/blog/2008/12/stem-cell-therapy-for-optic-nerve-hypoplasia-american-doctor-isnt-blind-to-fact-that-it-works/
· Lydia Black’s father said: “the treatment is already having a huge effect on her life, and he is glad that she was able to receive stem cell treatment…” http://donmargolis.com/blog/2008/06/stem-cell-research-treatment-septo-optic-dysplasia/
· Savannah Watring’s mother said: “She said hello to herself in an elevator (after seeing her reflection). It blew everyone away. We weren’t expecting that.” http://donmargolis.com/blog/2008/08/optic-nerve-hypoplasia-helped-by-stem-cell-therapy/
· Xavier Carballo’s ophthalmologist, Dr. Jack Guggino of Tampa, said he did a baseline exam on the boy before the trip to China and after his return. Before the treatment Xavier could only detect hand motion at 1 to 2 feet, and after the treatment he could count fingers at 3 to 4 feet. “As far as Xavier is concerned, there has been definite and measurable improvement, neurologically and ophthalmologically,” Guggino said. http://donmargolis.com/blog/2009/01/stem-cell-treatment-helps-yet-another-optic-nerve-hypoplasia-patient/
· Lawrence Brown III looks at the number “10” on a family laptop and tells his mother Georgina Brown what the number is as part of a daily exercise to see if his sight is improving. For most people, it is insignificant. But for Lawrence, 16, who has been blind since birth, it was an exceptional moment.“They call it a really good placebo effect,” Lawrence said. “Whatever, if it’s a placebo effect, I want some more.” http://repairstemcell.wordpress.com/2009/08/09/stem-cell-therapy-shows-results-el-paso-times/
· Blind Man Can See Again After Stem Cell Therapy – A man blinded after having ammonia squirted in his eye is now able to see again thanks to adult stem cells taken from his own body. Russell Turnbull, 38, from England had therapy using stem cells taken from his other eye in a research study in London. http://donmargolis.com/Home/Blog/December-2009/Blind-Man-Can-See-Again-After-Stem-Cell-Therapy
· A study in the New England Journal of Medicine on 112 patients with corneal damage from chemical burns whom received treatment. After adult stem cell treatment, a permanent restoration of a transparent, renewing corneal epithelium was attained in 76.6% of eyes. The restored eyes remained stable over time, with up to 10 years of follow-up (mean, 2.91±1.99; median, 1.93). http://repairstemcell.wordpress.com/2010/06/24/chemically-burned-eyes-repaired-with-stem-cells/
If you or a loved one interested in receiving FREE information on currently available stem cell treatments for OPTIC NERVE HYPOPLASIA, SEPTO-OPTIC DYSPLASIA, MACULAR DEGENERATION and OPTIC CHEMICAL BURNS, please fill go here: http://www.repairstemcells.org/Treatment/Treatment-Request.aspx?d=Optic+Nerve+Disorders
Way back in 2009, Sarah Schutt was a 22 year old college student studying to become a Physician’s Assistant. Then she heard that her 2-year-old hypoplasia-blinded daughter was not incurable, but that many such babies had some vision returned in China. She left college, spent days and weeks learning about stem cells, raised funds from a generous small-town community and….well, let’s start at the beginning.
When Heather Schutt was born in 2007, she was blind, unable to see the faces of those who loved her, were caring for her. When she was two years old, local charitable organizations and donors raised $36,000 to send Heather to Qingdao, China, for a treatment that uses umbilical-cord stem cells to restore sight. The treatment for those with optic nerve hypoplasia is unavailable in the United States….and Sarah knows better than most why. “I was able to do a lot of research on my own,” she said.
Heather traveled with her mother, 23-year-old Sarah Schutt, and her great-grandmother, Nancy Erb, of Mifflinburg, to the Chinese hospital, where she received six intravenous treatments in four weeks.
“I don’t think she really understands,” Sarah said of Heather’s grasp of what happened to her. “She knew we weren’t home, and she really didn’t like the needle part …”After a five-week stay in China, they returned home July 20..
Medical professionals in China performed blood work every week on Heather, and though they explained the process, Sarah knew exactly what to expect and had few worries.
“I probably knew as much as the nurses,” she joked.
Physicians in America told Sarah that optic nerve hypoplasia causes vision problems and affects hormones. But in China, Sarah learned others had suffered even more as a result of it. The condition can cause growth, weight and brain damage, though it is not degenerative. Each child with the condition may be affected differently.
“It could get better,” Sarah said. “But without stem cells, most people don’t see a difference.”
Sarah said it is politics that kept such a procedure from being conducted in the United States.
“China uses umbilical-cord stem cells,” Sarah said, “which is pretty much considered medical waste.”
The embryonic component, however, continues to be added to legislative bills, and nothing is ever passed because of the controversy, she said. The treatment is used also to heal diseases such as multiple sclerosis.
When Heather was 4 months old, Sarah said, “We just didn’t think her sight was right. They hoped to have a pediatrician examine Heather, but then she got sick, had a seizure, and was in the hospital for 11 days. Her sugar level had dropped, and that’s when physicians discovered her hormone and sight trouble.
Optic nerve hypoplasia is one of the leading causes of blindness in children. “It was hard to accept at first,” Sarah said. “One of the first things we were told was there’s nothing that can be done.” While Heather couldn’t see or understand what was happening, Sarah was trying to settle the news in her own mind as well. But about four to five months later, hope arose.
Trucker Harold Wohlheiter, a member of the Masonic Motorcycle Club International Chapter 38, had picked up a publication in Harrisburg called “Moving On,” a magazine with articles all about truckers. One of those articles was about a little boy from Pennsylvania who had optic nerve hypoplasia. The boy’s grandparents had learned about stem cell surgery in China and raised the money necessary to send him there.
“I had this article in the truck for several weeks,” he said.
And then, one Sunday morning, while attending a breakfast at a local American Legion post, he met some of Heather’s relatives, including her grandparents, Linda and Glen Troup, whom he knew but hadn’t seen in several years. “We started reminiscing and talking,” Wohlheiter said.
A grandfather himself, he said they began sharing information about their grandchildren. The Troups then explained to him about Heather and her vision condition — the same one he had read about in the magazine article. “It’s like someone hit me with a hammer,” he said. The Lord really does work in mysterious ways---Don M.
He gave the article to the Troups, and Sarah contacted the Pennsylvania family in the article to get more information about what they may be able to do for Heather. But Wohlheiter thought he needed to do more, and he pitched the idea to raise money for Heather to his fellow motorcycle riders with Chapter 38.
“This thing fell in my lap,” he told them, “and I think we needed to do something.” His organization and another combined to raise about $20,000 for the trip. “Everyone was touched by this little girl’s story,” Wohlheiter said. Even in the rain, members showed up to run a fundraiser for Heather last August.
“I think it’s absolutely wonderful we could help give her sight,” said Nicole Longenberger, president of Coming Together with a Cause. “It’s the best gift — to see the faces of her loved ones, the smiles on their faces, and bright colors.”
The organization conducts two fundraisers each year to help children in need. Chapter 38 also does several fundraisers each year to help people in the community. In July, they escorted the body of a lance corporal killed overseas from the airport to his hometown of Williamsport. “It was a honor to do this,” Wohlheiter said, “but I don’t know if I want to do it again. It’s hard to ride a motorcycle while crying.”
It was hard to tell how fully the treatment had affected Heather’s vision at first. Once seeing only light and shadows, Sarah said, “We know she had vision before.” In addition, “She’s always been confident and independent,” she said.
But some changes were noticed after the first few treatments, and since July 20, when they returned home, and the stem cells began to work, Sarah said she has seen progress in her daughter.
When toys once had to be a foot in front of her for Heather to notice they were there — and then only an outline or a shadow — she now can located a toy three feet away.
And when once she swept in with both hands to take hold of something, she is now using one hand.
Her speech has also improved.
Sarah said doctors told her it could take up to six months to a year to see the full effects of the treatment.
Already beginning to teach Heather how to read Braille, Sarah is hoping that the little girl won’t need it.
“Our goal is that she will be able to function in public school,” Sarah said, “even if it’s with a little help.”
Heather continues to do the same things she’s always done.
She loves junk food, and often asks for her favorite foods — applesauce, pudding and “sghetti.”
Her favorite toy is a big ball won at the Union County West End Fair.
Sarah plans to dress Heather in a couple of traditional Chinese dresses she bought while in China, and take her picture to post on thank-you cards to all those who helped to send her there.
An annual haunted hay ride fundraiser will continue to be held in October to raise money to assist in Heather’s return to the Chinese hospital for more treatments that could help to restore even more of her sight, or for other families who want to go to China for the same.
This year, the ride will be held Oct. 22-23, and Oct. 29-30 at the West End Fairgrounds.
Donations may be made to Heather Schutt’s Medical Expense Trust at Mifflinburg Bank & Trust Co., P.O. Box 186, Mifflinburg, PA 17844.
More information is available by visiting www.myspace.com/stemcells4heather, e-mailing email@example.com, or calling Sarah or Linda at 524-4184.
Stem Cells Help New York Girl See The Light
A young New York girl is already experiencing improvements in her septo-optic dysplasia following stem cell therapy in China. London Call, 2, has improved her quality of life in various ways just after returning to New York from the adult stem cell treatment. And the good thing is since she just completed the therapy, the stem cells may still have more potential to help her in the coming months.
Before The Adult Stem Cell Treatment
- was in complete darkness, could not perceive any light
- could not stand up on her own
- difficulty speaking
After The Stem Cells Were Implanted
- pupils dilated when a light hit them meaning London could see light.
- can stand up on her own for 15-20 seconds. Can also pick herself off the ground if she falls, something she couldn't do before
- now is using more words than before, her vocabulary expanding quickly
From the stem cell news story
London was born with septo-optic dysplasia, a rare condition that caused her to be born without a septum pellucidum, which separates the ventricles of her brain. Her optic nerves are not large enough to send a message to the occipital lobe of her brain, causing her blindness.
When they found out about her condition, Call and her husband Brandon were told there was nothing to be done. Only later did they hear about experimental stem-cell treatments being done with umbilical cord stem cells (not embryonic ones) at a hospital in Qingdao, China.
After a massive, year-long fundraising effort in Saranac Lake and the surrounding communities, the family raised about $50,000 to pay for the treatments and were on their way.
Now That London Can See The Light, Why Can't The FDA?
Another case of it's a shame that the stem cell treatment is not available in the United States and this family had to raise money to receive the stem cells in a different country. However, if this treatment was not available in China, London wouldn't have any options as the family was told "there is nothing that can be done".
Luckily London's family didn't accept that and now London can see light. I dream of the day when the US FDA sees the light too and makes adult stem cells available in the United States.
Others With Septo-Optic Dysplasia Helped By Adult Stem Cells
London followed in the footsteps of other children like Scarlett Berkmire
, children with septo-optic dysplasia and optic nerve hypoplasia who have had a new world opened up by using adult stem cells.
Please check out more of our stem cell success stories for septo-optic dysplasia
Blinded Eye Given Gift of Sight Back After Stem Cell Treatment
A man blinded after having ammonia squirted in his eye is now able to see again thanks to adult stem cells taken from his own body. Russell Turnbull, 38, from England had therapy using stem cells taken from his other eye in a research study in London.
The treatment has enabled Russell to regain the use of his right eye after the ammonia attack. It was a very simple procedure in which cells were taken from his left eye (his good eye) and then grown in a lab and implanted into his right eye- as simple as that.
What Does Russell Have To Say?
From the stem cell news article:
Russell of Consett, Co Durham, had endured 12 years of painful treatments - which all failed - until he was asked to take part in the North East England Stem Cell Institute trial in 2006.
He said: "It has restored my sight. The results really are amazing and I cannot thank the doctors enough. It has given me my life back."
Stem Cell Process For Eyes
- A slice of stem cells one millimetre square is removed from the cornea of the patient's good eye
- It is placed on a sheet of amniotic membrane and immersed in blood from the patient and a solution of glucose, insulin and hydrocortisone
- The stem cells grow until they cover the surface of the membrane
- The surface layers of the bad cornea are then removed ready for the transplant of the new stem cells
- The membrane and stems cells are stitched to the damaged cornea.
- After eight weeks they graft to the cornea restoring the patient's sight
Move Along, Nothing To See Here Folks
While much is made of this stem cell research study, this isn't really so new. If you look at these stem cell treatment for cornea success stories
, you will see that adult stem cells have been helping cornea injuries for quite some time. Also, for other eye conditions helped by stem cell therapy- you can click for optic nerve helped by adult stem cells stories
Macular Degeneration seems to be difficult for adult stem cells at the moment, but there is no doubt in my mind that adult stem cell research will come up with something shortly thus benefitting millions.
Stem Cell Research Benefits Optic Nerve Hypoplasia Patient
Another young girl with optic nerve hypoplasia is reporting improvements in her vision after receiving stem cell treatment. Lilli Mann, 8, from North Dakota is now seeing things she has never seen before after getting stem cell research in China using cord blood stem cells.
The Only Viable Treatment For ONH
Lilli is the latest child to show improvements in her vision following the therapy and research Optic nerve hypoplasia or ONH is a genetic condition in which the optic nerve fails to develop leaving the patient blind or with very limited vision. Until adult stem cells, there was no way to help these patients. Adult Stem Cell treatment is the first viable therapy for this condition as many children have proved.
Before Receiving Adult Stem Cells
- Could Only See Large Letters From 15 cm away on Eye Exam
- Could Only Listen To TV
- Never Saw Snow
After The Stem Cell Treatment
- Now Can See Large Letters From 60 cm away on Eye Exam - Quadruple Improvement!
- Can Now Watch TV
- Saw snow for the first time as well as countless other things she never had the opportunity to see
From the stem cell news story
Lilli, born with optic nerve hypoplasia, an incurable disease which occurs while in the womb, traveled to Qingdao, China, with her mother in September to receive stem cell injections said to repair damaged nerve tissue. Although the 25-day visit was difficult and full of treatments and therapies brand new to Lilli, for the Manns the results are thrilling.
Lilli was particularly thrilled to be able to read large print. During an eye test, Christi indicated doctors determined Lilli was seeing large letters from 60 centimeters away, when at home, prior to the treatment, she was seeing them at 15 centimeters away.
Now that she has returned to Wahpeton, Lilli's improved range of vision continues at home and in the classroom
. She's pointed out to her parents' cars parked an average of two parking lots away. Christi said she's even been able to identify the car's color.
In school, Lilli is able to participate in games of kickball in gym class, where they use a purple ball she's able to identify.
Stem cells are meant to work as an "internal repair system" that mature between six and nine months of being injected. While the Manns hope for improvement beyond what Lilli has gone through to date, she'll always maintain what advances she's made because of her visit to China.
Christi first began to see a change in Lilli during outings to the mall being built across the street from the hospital in Qingdao.
"We went there everyday to get out and do something," Christi said. "She'd find things on the wall and ask what they were."
Quality of Life Improvements From Adult Stem Cells
Another quality of life improvement thanks to adult stem cells. Since the therapy was made available, many youngsters like Macie Morse
, the young girl from Colorado with ONH who can now drive after the stem cell research and treatment and Lawrence Brown
, a young man from Texas who also has improved greatly.
If you are interested in stem cell treatment for ONH or some other disease or condition, please go to Adult Stem Cell Research
and fill out the form and we will be happy to assist you.